KDVS
Recently C17q21.31 MDS was given an official name of Koolen-deVries Syndrome. Learn more here.
The C17q21.31 Project
This website was put together by Dr. Koolen & DeVries to show us what they have learned so far about this rare chromosome disorder.
Yahoo Support Group
This group is for parents of chromosome 17 syndromes. 17q, 17p, 17q duplications, 17q duplications, 17q deletions, 17p deletions, 17q21, any type of rare chromosome disorders that affect chromosome 17.
Chromosome Disorder Outreach [CDO]
Chromosome Disorder Outreach, Inc. is a non–profit organization, founded, supported, and run by parents just like you.
Unique
This is a rare chromosome disorder support group.
Chromo17 Europe
A support group dedicated to Chromosome 17 abnormalities for parents and children in Europe.
Koolen deVries Syndrome on Facebook
A Facebook page was created for families of C17 children. Come by and see what’s new and exciting.
